Tag Archives: PCORI

Answering questions together

Last weekend I travelled to Washington DC to help create a new model for government-funded medical research. As a parent of a child with special needs who spends most of my time thinking about children with special needs, this 150-person … Continue reading

Posted in special needs parenting | Tagged , , , , , , , , , | 4 Comments

A gift from the messengers

Special needs fill nearly every thought and moment of my life lately. My mind has become a radio station that plays all advocacy with no commercial interruptions. Health care reform and medical home are in heavy rotation, along with the … Continue reading

Posted in developmental disability, disability, special needs parenting | Tagged , , , , , , , , , | 10 Comments