Category Archives: special needs

No Pity, part 1

I bring along my son, who attends a special education school many miles away, when I pick up my daughter at her neighborhood school’s after-school program. Since he started attending the far-far-away school a year ago, the ties that bind … Continue reading

Posted in developmental disability, disability, disability rights, IEP, inclusion, recreation, special education, special needs, special needs parenting | Tagged , , , , , , , | 5 Comments

My six word memoir(s)

My airwaves have been silent lately. Some new professional opportunities have offered me the chance to share my perspective as a special needs parent to such a remarkable degree that I seem to have little time and few words left … Continue reading

Posted in developmental disability, disability, special needs, special needs parenting | Tagged , , , , | 8 Comments

Overtaken or working through?

Last week I wrote about how my professional and personal worlds are colliding now that I’ve started working for a project that advocates for kids (of all kinds, but especially with special needs) and their families in healthcare reform. Sitting … Continue reading

Posted in civil rights, developmental disability, disability rights, special needs, special needs parenting | Tagged , , | 2 Comments

A few minutes in the hospital lobby

I arrived a little earlier than expected at our local pediatric hospital last Friday. I have spent plenty of hours there with my son, both inpatient and outpatient, or visiting friends whose children are also patients, providing plenty of opportunities … Continue reading

Posted in meditation, special needs | Tagged , , , , , , , | 4 Comments

Embracing Special Needs Parenthood…same great taste, but juicier

There’s a change I’ve been putting off for a long time because I didn’t want to confuse anyone, but I just can’t hold back any longer. Not being able to stop one’s self is either a sign of an incredible … Continue reading

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A new perspective on sinking and swimming

Other people’s dreams can be so tedious, I know, but it can’t be helped. I’m at a support group with other parents of special needs kids; I can’t see the other participants (am invisible to them, too) because the room is … Continue reading

Posted in developmental disability, disability, IEP, special needs, special needs parenting | Tagged , , , , | 6 Comments

Scene from a breakfast table

INT. AT A BREAKFAST TABLE – MID-MORNING The table is set for four although only two people sit at the table — an energetic seven-year-old DAUGHTER and a slightly groggy and disheveled woman, her MOTHER. At the two other place … Continue reading

Posted in developmental disability, special needs, special needs parenting | Tagged , , , , , | 10 Comments