Category Archives: special needs parenting

Say my name, say my name

Having just hit the four-year mark of living “far, far away,” I’ve been wrestling with my American-ness lately. Not in terms of politics or current affairs, just generally about where my American identity appears on the Venn diagram of me. … Continue reading

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Overcoming paralysis with a single step

In a recent stress dream, I sat in an airport coffee shop knowing I was supposed to board a plane, but with no recollection of when the it was going to take off or from which gate. Despite being surrounded by information counters and departure … Continue reading

Posted in developmental disability, special needs parenting, special needs parenting, IEP, autism, Down's, special education, ABA | Tagged , , , , | 6 Comments

Getting off on the wrong foot

“Louis, this feels like the beginning of a beautiful friendship” says Humphry Bogart as Rick Blaine in Casablanca. I don’t recall what Louis had said or done to prompt Bogie’s remark, but it certainly wasn’t whatever happened to me today when my … Continue reading

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Parenting in a hospital, then and now

Despite the fact that my son is considered a “sick kid”—a child with multiple, chronic conditions—he actually hasn’t been in the hospital for years. About a month ago, his winter cold turned into pneumonia, and we’ve been reacquainted with hospital … Continue reading

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I came in last. And it was great.

I ran a 10 km road race this weekend, and I finished dead last. And it was great. I wasn’t expecting to win. When I registered, I figured that like in the many festive road races I’d run before, I’d … Continue reading

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I made it possible

This afternoon I hemmed a pair of curtains with stitchwitchery, that magical roll of some sort of tape which, when ironed between two pieces of fabric, makes a needle and thread unnecessary. I have no idea what it’s made of. There was … Continue reading

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Turning the page on reading

I love reading. I love reading fiction, being transported to worlds real and imagined, past, present or future. I love a good memoir, how I get to slip inside another person and see the specificity of their story and universality how … Continue reading

Posted in special needs parenting | Tagged , , , , , , , , | 8 Comments