Category Archives: developmental disability

Mind the Gap

“What doesn’t kill you makes you stronger,” is a go-to saying in the special needs parenting community, something we say to each other at particularly difficult times when there’s nothing else to say, right up there with “Keep calm and … Continue reading

Posted in developmental disability, special needs parenting | Tagged , , , , , | 1 Comment

A gift from the messengers

Special needs fill nearly every thought and moment of my life lately. My mind has become a radio station that plays all advocacy with no commercial interruptions. Health care reform and medical home are in heavy rotation, along with the … Continue reading

Posted in developmental disability, disability, special needs parenting | Tagged , , , , , , , , , | 10 Comments

I get by with a little help from my friends

Several years ago at the playground of our integrated preschool, a bunch of my mom friends were discussing the pros and cons of the kindergartens they had the option of sending their kids to the following year. Since my son … Continue reading

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The Birthday Girl Gives Everyone Else a Gift

This Saturday my son and daughter went to a birthday party of a very close friend, let’s call her the Birthday Girl, who recently moved to another town. Though the Birthday Girl’s older sister has been acutely aware of my … Continue reading

Posted in bullying, developmental disability, disability rights, gratitude, inclusion, social justice, special education, special needs parenting | Tagged , , , , , | 4 Comments

No Pity, part 1

I bring along my son, who attends a special education school many miles away, when I pick up my daughter at her neighborhood school’s after-school program. Since he started attending the far-far-away school a year ago, the ties that bind … Continue reading

Posted in developmental disability, disability, disability rights, IEP, inclusion, recreation, special education, special needs, special needs parenting | Tagged , , , , , , , | 5 Comments

My six word memoir(s)

My airwaves have been silent lately. Some new professional opportunities have offered me the chance to share my perspective as a special needs parent to such a remarkable degree that I seem to have little time and few words left … Continue reading

Posted in developmental disability, disability, special needs, special needs parenting | Tagged , , , , | 8 Comments

Overtaken or working through?

Last week I wrote about how my professional and personal worlds are colliding now that I’ve started working for a project that advocates for kids (of all kinds, but especially with special needs) and their families in healthcare reform. Sitting … Continue reading

Posted in civil rights, developmental disability, disability rights, special needs, special needs parenting | Tagged , , | 2 Comments