Category Archives: developmental disability

Overcoming paralysis with a single step

In a recent stress dream, I sat in an airport coffee shop knowing I was supposed to board a plane, but with no recollection of when the it was going to take off or from which gate. Despite being surrounded by information counters and departure … Continue reading

Posted in developmental disability, special needs parenting, special needs parenting, IEP, autism, Down's, special education, ABA | Tagged , , , , | 6 Comments

Mind the Gap

“What doesn’t kill you makes you stronger,” is a go-to saying in the special needs parenting community, something we say to each other at particularly difficult times when there’s nothing else to say, right up there with “Keep calm and … Continue reading

Posted in developmental disability, special needs parenting | Tagged , , , , , | 1 Comment

A gift from the messengers

Special needs fill nearly every thought and moment of my life lately. My mind has become a radio station that plays all advocacy with no commercial interruptions. Health care reform and medical home are in heavy rotation, along with the … Continue reading

Posted in developmental disability, disability, special needs parenting | Tagged , , , , , , , , , | 10 Comments

I get by with a little help from my friends

Several years ago at the playground of our integrated preschool, a bunch of my mom friends were discussing the pros and cons of the kindergartens they had the option of sending their kids to the following year. Since my son … Continue reading

Posted in developmental disability, special needs parenting | Tagged , , , , , , , , | 3 Comments

The Birthday Girl Gives Everyone Else a Gift

This Saturday my son and daughter went to a birthday party of a very close friend, let’s call her the Birthday Girl, who recently moved to another town. Though the Birthday Girl’s older sister has been acutely aware of my … Continue reading

Posted in bullying, developmental disability, disability rights, gratitude, inclusion, social justice, special education, special needs parenting | Tagged , , , , , | 4 Comments

No Pity, part 1

I bring along my son, who attends a special education school many miles away, when I pick up my daughter at her neighborhood school’s after-school program. Since he started attending the far-far-away school a year ago, the ties that bind … Continue reading

Posted in developmental disability, disability, disability rights, IEP, inclusion, recreation, special education, special needs, special needs parenting | Tagged , , , , , , , | 5 Comments

My six word memoir(s)

My airwaves have been silent lately. Some new professional opportunities have offered me the chance to share my perspective as a special needs parent to such a remarkable degree that I seem to have little time and few words left … Continue reading

Posted in developmental disability, disability, special needs, special needs parenting | Tagged , , , , | 8 Comments