Monthly Archives: February 2013

Care Mapping “How-To” Guides Now Available!

Finally! I’ve been promising a “how-to” guide on care mapping for the last few weeks, and it’s finally ready. My partner, Richard C. Antonelli, MD and his team at Boston Children’s Hospital have made a care mapping web page possible. … Continue reading

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Waiting for the New Health Care

This morning my son fell down the stairs, using his eye brow to cushion the blow. The same place where he’s landed twice before, with the scars to prove it. This time wasn’t so bad though, so after a cuddle on … Continue reading

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Patients are health care workers, too.

I had an interesting experience this past week trying to participate in a health care conversation on line in a Swedish healthcare publication called Dagens medicin. Though some of the comments below are in Swedish, I think you can get … Continue reading

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More breakfast table talk

About a year ago I wrote about a brutally and beautifully honest conversation that I had with my daughter about her brother’s developmental disability. A wise friend commented that our conversation would be one of many “periodic check-ins.” She was … Continue reading

Posted in special needs parenting | Tagged , , , , , , | 12 Comments