Tag Archives: special needs parenting
Spending some time at the Threshold
When my husband and I moved our family from Boston to Stockholm last week, we decided to kick the whole she-bang up a notch by getting ourselves to Europe by boat on the Queen Mary 2. A week-long break between … Continue reading
Care mapping conversation deepens on Huff Post Live
The HuffPo article by Lisa Belkin, “Gabe’s Care Map,” generated a lot of conversation and interest in creating data-rich, holistic snapshots of just what it takes to raise our kids. I’ve heard from lots of parents who are already making … Continue reading
Opportunity for advocacy: Did you make a care map?
My care map generated a lot of attention and new friends over the last few days. There’s a media request for follow up from folks who went ahead and made their own. If you did and you’d be willing to … Continue reading
Durga’s Tool # 637: Love, even when it’s hard
Another installation in my series of tools that helps me parent with compassion, courage and joy, inspired by the goddess Durga, who has always got my back. Lisa Belkin at the Huffington Post did a wonderful story on me, my … Continue reading
Thanking our village
I just spent the morning dipping Oreos for teachers and helpers, which is apparently now my signature teacher gift. (Can something be “signature” after only two times?) It got me thinking back to last year’s post, which is still completely … Continue reading
Water, water everywhere
I’ve been quiet, but life hasn’t. Returning from some back-to-back conferences, I dive into our latest round of potty training my 10-year-old son, who confounds us by being successfully able to stay dry at school but not at home. You … Continue reading
Bushwacking: Four stages of becoming a family leader
Tomorrow morning I’m going to lead a round table discussion for special needs parents on using advocacy skills for systems change, also known as family leadership. If you’ve known me for a while, you realize how ironic this is. A … Continue reading
A gift from the messengers
Special needs fill nearly every thought and moment of my life lately. My mind has become a radio station that plays all advocacy with no commercial interruptions. Health care reform and medical home are in heavy rotation, along with the … Continue reading
Mi casa es everybody’s casa
I am sometimes asked what it feels like to share so much personal information on this blog. After years of raising a child with special needs, I can honestly say that privacy is something I barely remember. I know lots … Continue reading
I get by with a little help from my friends
Several years ago at the playground of our integrated preschool, a bunch of my mom friends were discussing the pros and cons of the kindergartens they had the option of sending their kids to the following year. Since my son … Continue reading
