Tag Archives: Special needs
Durga’s Tool #2.1: Empty space
Even at the dawn of the Durga’s Toolbox series, I so appreciated the value of decluttering that I made it a seminal tool, giving it the #2 spot. When I wrote about it then, it was at the culmination of a … Continue reading
Durga’s Tool #421: Prostration
Here’s another in my toolbox series of techniques that inspire me to live with joy, compassion and courage, as inspired by the Hindu goddess Durga – my nominee for patron saint of special needs parents. Several years ago I heard a radio interview with … Continue reading
Leaving the safe harbor
“Twenty years from now you will be more disappointed by the things that you didn’t do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your … Continue reading
Special needs eclipse
I had a special needs eclipse this morning. One of those moments when the challenges of raising a kiddo who needs a lot of help blocks out all of the light. The details aren’t important, but I can say that … Continue reading
Care Mapping “How-To” Guides Now Available!
Finally! I’ve been promising a “how-to” guide on care mapping for the last few weeks, and it’s finally ready. My partner, Richard C. Antonelli, MD and his team at Boston Children’s Hospital have made a care mapping web page possible. … Continue reading
More breakfast table talk
About a year ago I wrote about a brutally and beautifully honest conversation that I had with my daughter about her brother’s developmental disability. A wise friend commented that our conversation would be one of many “periodic check-ins.” She was … Continue reading
No Pity, part 1
I bring along my son, who attends a special education school many miles away, when I pick up my daughter at her neighborhood school’s after-school program. Since he started attending the far-far-away school a year ago, the ties that bind … Continue reading
My six word memoir(s)
My airwaves have been silent lately. Some new professional opportunities have offered me the chance to share my perspective as a special needs parent to such a remarkable degree that I seem to have little time and few words left … Continue reading
Overtaken or working through?
Last week I wrote about how my professional and personal worlds are colliding now that I’ve started working for a project that advocates for kids (of all kinds, but especially with special needs) and their families in healthcare reform. Sitting … Continue reading
No big whoop?
The special needs blogosphere and social media outlets are abuzz about this recent Target ad featuring a boy with Down Syndrome. This kid is cute. Really cute. It’s great to see him there. The big news isn’t the fact that … Continue reading
