Category Archives: developmental disability

A gift from the messengers

Special needs fill nearly every thought and moment of my life lately. My mind has become a radio station that plays all advocacy with no commercial interruptions. Health care reform and medical home are in heavy rotation, along with the … Continue reading

Posted in developmental disability, disability, special needs parenting | Tagged , , , , , , , , , | 10 Comments

I get by with a little help from my friends

Several years ago at the playground of our integrated preschool, a bunch of my mom friends were discussing the pros and cons of the kindergartens they had the option of sending their kids to the following year. Since my son … Continue reading

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The Birthday Girl Gives Everyone Else a Gift

This Saturday my son and daughter went to a birthday party of a very close friend, let’s call her the Birthday Girl, who recently moved to another town. Though the Birthday Girl’s older sister has been acutely aware of my … Continue reading

Posted in bullying, developmental disability, disability rights, gratitude, inclusion, social justice, special education, special needs parenting | Tagged , , , , , | 4 Comments

No Pity, part 1

I bring along my son, who attends a special education school many miles away, when I pick up my daughter at her neighborhood school’s after-school program. Since he started attending the far-far-away school a year ago, the ties that bind … Continue reading

Posted in developmental disability, disability, disability rights, IEP, inclusion, recreation, special education, special needs, special needs parenting | Tagged , , , , , , , | 5 Comments

My six word memoir(s)

My airwaves have been silent lately. Some new professional opportunities have offered me the chance to share my perspective as a special needs parent to such a remarkable degree that I seem to have little time and few words left … Continue reading

Posted in developmental disability, disability, special needs, special needs parenting | Tagged , , , , | 8 Comments

Overtaken or working through?

Last week I wrote about how my professional and personal worlds are colliding now that I’ve started working for a project that advocates for kids (of all kinds, but especially with special needs) and their families in healthcare reform. Sitting … Continue reading

Posted in civil rights, developmental disability, disability rights, special needs, special needs parenting | Tagged , , | 2 Comments

Durga Tool #7: Google Scholar, as symbolized by Q

Here’s another in my toolbox series of techniques that inspire me to live with joy, compassion and courage, as inspired by the Hindu goddess Durga  – my nominee for patron saint of special needs parents. Back in the day, when … Continue reading

Posted in developmental disability, genetics, special needs parenting | Tagged , , , , , , | 4 Comments

Durga Tool #6: Synchronicity, Luck or Fate (whatever it is, I’ll take it!)

Here’s another in my toolbox series of techniques that inspire me to live with joy, compassion and courage, as inspired by the Hindu goddess Durga  – my nominee for patron saint of special needs parents. Well, it’s official. The blood … Continue reading

Posted in developmental disability, genetics, special needs parenting | Tagged , , , , , , , , | 5 Comments

“Let there be peace, welfare and righteousness”

Reflecting on Rev. Martin Luther King, Jr.‘s contribution to peace  thought I’d share a blessing by Hagen Hasselbalch which I found in Earth Prayers. It so beautifully captures the open-armed ambitions of the peace movement inspired by folks like Dr. King: … Continue reading

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Show me love

Everyone shows love in different ways. Children with special needs are no different in that regard, maybe even hardwired to be more different than usual. While Williams Syndrome is associated with a “cocktail party personality,” one of the defining characteristics of … Continue reading

Posted in developmental disability, special needs parenting | Tagged , , , , , , , | 12 Comments