Here’s another in my toolbox series of techniques that inspire me to live with joy, compassion and courage, as inspired by the Hindu goddess Durga – my nominee for patron saint of special needs parents.
I was at a workshop this weekend for people with special needs and their parents, learning about how to advocate. The course leader delivered a short parable that skillfully summed up a key strategy for success.
“Let’s imagine I have two aunts,” she began. “I haven’t seen either of them in a while and so I go to each of them for a visit. At one visit my first aunt desperately says, ‘Where have you been? I’ve been waiting for you to visit for ages. I’m so lonely and you never visit anymore.’ The second one says warmly, ‘Welcome! I am so glad to see you. I know it’s been years but I’m so happy we have time to have some tea and catch up.'”
The course leader encouraged us to think about what each of those visits would feel like. She went on to ask: Which visit were we more likely to enjoy? Which aunt were we likely to visit again?
And so it is with this work, that you and I will often have to meet with people to ask for their help or their support. Maybe they are gatekeepers of services for our own families, or maybe they are policy makers with the power to change the playing field for thousands of families like ours. Maybe we meet them in a public meeting, maybe we deal with them by email or phone, or maybe we find ourselves sitting across the table from them at an annual review of services.
In those moments, are we the angry, desperate aunt or the friendly, inviting one?
I think sometimes we special needs parents are getting the wrong message. We’re told that if we want to be effective, we should be the mama bear — fierce and protective. Or the victim, sad and pleading.
The course leader’s parable reminded me that I have other options, ones that actually might be more effective than anger or sadness. I can be friendly. I can be willing to meet someone half way. If I can do that, I’m more likely to get what I need, for human nature is such that we are attracted to the pleasurable and repelled by the unpleasant. That’s just the way it is.
The challenge, of course, is that sometimes we feel really righteous in our sorrow or our anger. On the surface it seems so obvious that we should be angry or sad that to be positive or collaborative would be false or self-obliterating. How can you be pleasant and cheerful when the other person is ignoring the law or hiding behind a culture of bureaucracy and complacency?
In those moments I remember the words of Parker Palmer: When the going gets rough, turn to wonder.
Wonder, as in, “I wonder what could have caused our education system to produce a policy like that. I wonder how I change that policy.” Or “I wonder what is going on with our health care system that makes this person feel like it’s ok for them to treat me this way. I wonder how I change that system.” Or even, “I wonder why I am getting so upset about this that I am willing to abandon my own integrity. I wonder why I am yelling right now.” Turning to wonder for me has often gives me the breathing room to not take things so personally, to continue to see the other person as a person even when I’d rather not.
It’s easier said than done, I know. I forget this lesson all the time. Just this morning I had an interaction with a dental scheduler that could have gone better. But if I’m lucky, I’ll get lots of chances to practice. Until then, I’ll just have to wonder what it would take for me to learn this lesson faster.